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     Information Standard
          RareRenal.org Protocol
          Writing for RareRenal Guidelines

     Patient Information
         Alport Syndrome
         APRT Deficiency
         Bartter Syndrome (Types 1, 2 & 4)
         Bartter Syndrome (Type 3) & Gitelman Syndrome 
         Cystinosis
              Cystinosis Medical Alert
              White Cell Cystine Sampling Guidance
          Cystinuria
          Dense Deposit Disease
          Dent Syndrome
          EAST Syndrome 
          Familial Uromodulin Associated Nephropathy
          Atypical Haemolytic Uraemic Syndrome
          Shiga Toxin Associated Haemolytic Uraemic Syndrome
          Hepatic Nuclear Factor 1B mutation
               HNF1B Patient Information Day
          Hyperoxaluria
               Primary Hyperoxaluria Patient Information Day 
          Liddle Syndrome
          Lowe Syndrome
          Membranoproliferative Glomerulonephritis
          Membranous Nephropathy
          Nephrotic Syndrome
          Autosomal Recessive Polycystic Kidney Disease
               ARPKD Patient Information Day
          Pregnancy and Chronic Kidney Disease

     Clinician Information
         Alport Syndrome
         APRT Deficiency
         Bartter Syndrome (Types 1, 2 & 4)
         Bartter Syndrome (Type 3)
         Cystinosis 
         Cystinuria
         Dense Deposit Disease  
         Dent Syndrome
         EAST Syndrome 
         Familial Uromodulin Associated Nephropathy
         Gitelman Syndrome 
         Atypical Haemolytic Uraemic Syndrome
         Shiga Toxin Associated Haemolytic Uraemic Syndrome
         Hepatic Nuclear Factor 1B mutation 
         Hyperoxaluria
         Liddle Syndrome 
         Lowe Syndrome
         Membranoproliferative Glomerulonephritis 
         Membranous Nephropathy
         Nephrotic Syndrome
              SRNS Clinical Genetic Testing
         Autosomal Recessive Polycystic Kidney Disease
         Pregnancy and Chronic Kidney Disease
         Vasculitis

     Rare Disease Groups
          Alport Syndrome 
          APRT Deficiency
          Cystinosis 
          Cystinuria
          Dent & Lowe Syndrome
          Familial Uromodulin Associated Nephropathy
          Atypical Haemolytic Uraemic Syndrome
          Shiga Toxin Associated Haemolytic Uraemic Syndrome
          Hepatic Nuclear Factor 1B mutation 
          Hyperoxaluria
          Hypokalaemic Alkaloses 
          Membranoproliferative Glomerulonephritis 
          Membranous Nephropathy
          Nephrotic Syndrome
          Autosomal Recessive Polycystic Kidney Disease 
          Pregnancy and Chronic Kidney Disease
          Vasculitis 

     Registry (RaDaR)
          RaDaR Registry Background Information
          RaDaR Recruitment Guide
          Criteria and Consent
          Alport Syndrome
          APRT Deficiency
          Cystinosis
          Cystinuria
          Dent & Lowe Syndrome
          Familial Uromodulin Associated Nephropathy
          Atypical Haemolytic Uraemic Syndrome
          Shiga Toxin Associated Haemolytic Uraemic Syndrome
          Hepatocyte Nuclear Factor 1B mutation
          Hyperoxaluria
          Hypokalaemic Alkaloses
          Membranoproliferative Glomerulonephrits
          Membranous Nephropathy
          Nephrotic Syndrome
          Autosomal Recessive Polycystic Kidney Disease
          Pregnancy and Chronic Kidney Disease
          Vasculitis

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