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This website provides comprehensive information about the rare disease initiative of the Renal Association. It includes:

  • Patient Information
  • Clinician Information
  • Information about nationally appointed expert groups (Rare Disease Groups, RDGs)
  • Information about the National Registry for Rare Kidney Diseases (RaDaR)
  • News items

How to navigate the new site.

You can navigate around the site using the tabs at the top of each page. You can then scroll down and click on the disease you want to know about.

Words in blue link directly to other parts of this site. Words in red link to a glossary.  Words in green link to external sites. RareRenal.org is not responsible for the accuracy of external sites.

Information for patients and their carers is produced in accordance with the Information Standard.