A Cystinosis Patient and Clinician Education Day will be held on Tuesday 19th September from 9.30 – 16.30 at the Postgraduate Centre, Queen Elizabeth Hospital, Birmingham.
Further details will be available nearer the time but to express an interest in taking part as a speaker please contact Michelle.Lowe@uhb.nhs.uk
A Cystinosis Study Day for Clinicians was held at the Queen Elizabeth Hospital in Birmingham on Tuesday 1st October 2013. For further details please click here.
The Cystinosis RDG is currently working on various projects and further information for this website including:
- Best practice guidelines
- Uploading articles relevant to Cystinosis
- Contributing towards research into new treatment preparations
- Applying for national designation for the care of patients with Cystinosis