A Cystinosis Patient Education Day will be held on Tuesday 19th September 2017 from 9.30am – 4.30pm at the Post Graduate Centre, Queen Elizabeth Hospital, Birmingham.
Patients and Health Professionals with an interest in Cystinosis are welcome.
To register for a place, please contact Michelle Lowe – Michelle.firstname.lastname@example.org
Cystinosis Patient Day 2017
A Cystinosis Study Day for Clinicians was held at the Queen Elizabeth Hospital in Birmingham on Tuesday 1st October 2013. For further details please click here.
The Cystinosis RDG is currently working on various projects and further information for this website including:
- Best practice guidelines
- Uploading articles relevant to Cystinosis
- Contributing towards research into new treatment preparations
- Applying for national designation for the care of patients with Cystinosis