RaDaR Data Entry Instructions

The following instructions indicate which tabs should be filled in for each cohort of patients on RaDaR.

Downloadable data entry instructions for all conditions.

Please contact us if you have queries about RaDaR data entry.

 

  • ADPKD

    Please fill in the following tabs for ADPKD patients:

    Compulsory

    • Demographics
    • Consultants
    • Primary Diagnosis

    Strongly Recommended

    • Co-morbidities
    • Genetics
    • Family History
    • Renal Imaging
    • Liver Imaging
    • Liver Disease

    If applicable

    • Kidney Transplants
    • Liver Transplants
    • Dialysis
    • Nephrectomies
    • Nutrition

    Transferred from Patient View if the patient is registered with both systems

    • Medications
    • Lab Results
  • Alports

    Please fill in the following tabs for Alport Syndrome patients:

    Compulsory

    • Demographics
    • Consultants
    • Primary Diagnosis

    Strongly Recommended

    • Genetics
    • Family History
    • Clinical Picture

    Transferred from Patient View if the patient is registered with both systems

    • Medications
    • Lab Results
  • ADTKD (FUAN)

    Please fill in the following tabs for (ADTKD/FUAN) patients:

    Compulsory

    • Demographics
    • Consultants
    • Primary Diagnosis

    Strongly Recommended

    • Co-morbidities
    • Genetics
    • Family History
    • Clinical Picture

    If applicable

    • Dialysis
    • Kidney Transplants

    Transferred from Patient View if the patient is registered with both systems

    • Medications
    • Lab Results
  • aHUS

    Please fill in the following tabs for aHUS patients:

    Compulsory

    • Demographics
    • Consultants
    • Primary Diagnosis

    Strongly Recommended

    • Co-morbidities
    • Family History

    If applicable

    • Dialysis
    • Plasmapheresis
    • Kidney Transplants

    Transferred from Patient View if the patient is registered with both systems

    • Medications
    • Lab Results
  • APRT-D

    Please fill in the following tabs for APRT-D patients:

    Compulsory

    • Demographics
    • Consultants
    • Primary Diagnosis

    Strongly Recommended

    • Genetics
    • Family History
    • Co-morbidities
    • Renal Imaging
    • Pathology

    If applicable

    • Dialysis
    • Plasmapheresis
    • Kidney Transplants

    Transferred from Patient View if the patient is registered with both systems

    • Medications
    • Lab Results
  • ARPKD

    Please fill in the following tabs for ARPKD patients:

    Compulsory

    • Demographics
    • Consultants
    • Primary Diagnosis

    Strongly Recommended

    • Co-morbidities
    • Genetics
    • Family History
    • Fetal Anomaly Scans
    • Renal Imaging
    • Liver Imaging
    • Liver Diseases
    • Nutrition

    If applicable

    • Kidney Transplants
    • Liver Transplants
    • Nephrectomies
    • Dialysis

    Transferred from Patient View if the patient is registered with both systems

    • Medications
    • Lab Results
  • Calciphylaxis

    Please fill in the following tabs for Calciphylaxis patients:

    Compulsory

    • Demographics
    • Consultants
    • Primary Diagnosis

    Strongly Recommended

    • Co-morbidities
    • Family History
    • Renal Imaging

    Transferred from Patient View if the patient is registered with both systems

    • Medications
    • Lab Results
  • Cystinosis

    Please fill in the following tabs for Cystinosis patients:

    Compulsory

    • Demographics
    • Consultants
    • Primary Diagnosis

    Strongly Recommended

    • Genetics
    • Family History
    • Renal Imaging

    If applicable

    • Dialysis
    • Kidney Transplants

    Transferred from Patient View if the patient is registered with both systems

    • Medications
    • Lab Results
  • Cystinuria

    Please fill in the following tabs for Cystinuria patients:

    Compulsory

    • Demographics
    • Consultants
    • Primary Diagnosis

    Strongly Recommended

    • Genetics
    • Family History
    • Renal Imaging

    Transferred from Patient View if the patient is registered with both systems

    • Medications
    • Lab Results
  • Dent Disease & Lowe Syndrome

    Please fill in the following tabs for Dent & Lowe patients:

    Compulsory

    • Demographics
    • Consultants
    • Primary Diagnosis

    Strongly Recommended

    • Genetics
    • Family History
    • Renal Imaging

    Transferred from Patient View if the patient is registered with both systems

    • Medications
    • Lab Results
  • Fabry Disease

    Please fill in the following tabs for Fabry Disease patients:

    Compulsory

    • Demographics
    • Consultants
    • Primary Diagnosis

    Strongly Recommended

    • Genetics
    • Family History
    • Renal Imaging

    If applicable

    • Dialysis
    • Kidney Transplants

    Transferred from Patient View if the patient is registered with both systems

    • Medications
    • Lab Results
  • Fibromuscular Dysplasia

    Please fill in the following tabs for Fibromuscular Dysplasia patients:

    Compulsory

    • Demographics
    • Consultants
    • Primary Diagnosis

    Strongly Recommended

    • Genetics
    • Family History
    • Renal Imaging

    Transferred from Patient View if the patient is registered with both systems

    • Medications
    • Lab Results
  • HNF1-B

    Please fill in the following tabs for HNF1-b patients:

    Compulsory

    • Demographics
    • Consultants
    • Primary Diagnosis

    Strongly Recommended

    • Genetics
    • Family History
    • Fetal Anomaly Scans
    • Renal Imaging
    • Clinical Pictures
    • Pathology

    If applicable

    • Dialysis
    • Kidney Transplants

    Transferred from Patient View if the patient is registered with both systems

    • Medications
    • Lab Results
  • Stec HUS

    Please fill in the following tabs for Stec-HUS patients:

    Compulsory

    • Demographics
    • Consultants
    • Primary Diagnosis

    Strongly Recommended

    • Genetics
    • Family History
    • Co-morbidities
    • Pathology

    If applicable

    • Dialysis
    • Plasmapheresis
    • Kidney Transplants

    Transferred from Patient View if the patient is registered with both systems

    • Medications
    • Lab Results
  • Hyperoxaluria

    Please fill in the following tabs for Hyperoxaluria patients:

    Compulsory

    • Demographics
    • Consultants
    • Primary Diagnosis

    Strongly Recommended

    • Genetics
    • Family History
    • Renal Imaging
    • Clinical Pictures

    If applicable

    • Dialysis
    • Kidney Transplants

    Transferred from Patient View if the patient is registered with both systems

    • Medications
    • Lab Results
  • Hypokalaemic Alkaloses

    Please fill in the following tabs for Hypokalaemic Alkaloses patients:

    Compulsory

    • Demographics
    • Consultants
    • Primary Diagnosis

    Strongly Recommended

    • Genetics
    • Family History
    • Clinical Features
    • Co-morbidities
    • Renal Imaging

    If applicable

    • Dialysis
    • Kidney Transplants

    Transferred from Patient View if the patient is registered with both systems

    • Medications
    • Lab Results
  • IgA Nephropathy

    Please fill in the following tabs for IgA Nephropathy patients:

    Compulsory

    • Demographics
    • Consultants
    • Primary Diagnosis

    Strongly Recommended

    • Genetics
    • Family History

    If applicable

    • Dialysis
    • Kidney Transplants

    Transferred from Patient View if the patient is registered with both systems

    • Medications
    • Lab Results
  • INS & NephroS
  • MPGN & National Study of MPGN
  • Membranous Nephropathy

    Please fill in the following tabs for Membranous Nephropathy patients:

    Compulsory

    • Demographics
    • Consultants
    • Primary Diagnosis

    Strongly Recommended

    • Genetics
    • Family History

    If applicable

    • Dialysis
    • Kidney Transplants

    Transferred from Patient View if the patient is registered with both systems

    • Medications
    • Lab Results
  • Pregnancy

    Please fill in the following tabs for Pregnancy and CKD patients:

    Compulsory

    • Demographics
    • Consultants
    • Primary Diagnosis

    Strongly Recommended

    • Pregnancies
    • Fetal Ultrasounds

    If applicable

    • Dialysis
    • Kidney Transplants

    Transferred from Patient View if the patient is registered with both systems

    • Medications
    • Lab Results
  • Pure Red Call Aplasia

    Please fill in the following tabs for Pure Red Cell Aplasia patients:

    Compulsory

    • Demographics
    • Consultants
    • Primary Diagnosis

    Strongly Recommended

    • Genetics
    • Family History

    If applicable

    • Dialysis
    • Kidney Transplants

    Transferred from Patient View if the patient is registered with both systems

    • Medications
    • Lab Results
  • Retroperitoneal Fibrosis

    Please fill in the following tabs for Retroperitoneal Fibrosis patients:

    Compulsory

    • Demographics
    • Consultants
    • Primary Diagnosis

    Strongly Recommended

    • Family History

    If applicable

    • Dialysis
    • Kidney Transplants

    Transferred from Patient View if the patient is registered with both systems

    • Medications
    • Lab Results
  • Tuberous Sclerosis

    Please fill in the following tabs for Tuberous Sclerosis patients:

    Compulsory

    • Demographics
    • Consultants
    • Primary Diagnosis

    Strongly Recommended

    • Co-morbidities
    • Genetics
    • Family History
    • Renal Imaging

    If applicable

    • Dialysis
    • Kidney Transplants

    Transferred from Patient View if the patient is registered with both systems

    • Medications
    • Lab Results
  • Vasculitis

    Please fill in the following tabs for Vasculitis patients:

    Compulsory

    • Demographics
    • Consultants
    • Primary Diagnosis

    Strongly Recommended

    • Comorbidities
    • Family History
    • Renal Imaging
    • Pathology

    If applicable

    • Dialysis
    • Kidney Transplants

    Transferred from Patient View if the patient is registered with both systems

    • Medications
    • Lab Results
Data Entry Instructions Version 4 updated April 2017
Written by the Rarerenal.org Operational Management Board