Cystinuria Patient Information Day, 22nd April


A Cystinuria Patient Information Day will be held at Guy’s Hospital, London on Saturday 22nd April 2017

The day is designed for patients, families and carers to learn more about Cystinuria and to meet other people with the condition

Attendance is free with lunch and refreshments provided but please register online at to book your place.

Cystinuria Patient Day flyer

Cystinuria Patient Day Programme

Rare Disease Day

Tuesday 28th February 2017 marks the tenth international Rare Disease Day. Hundreds of patient organisations from all over the world will be holding events designed to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives.

The theme for 2017 is research. Rare disease research is crucial to providing patients with the answers and solutions they need, whether it’s a treatment, cure or improved care.

RaDaR and are proud to support Rare Disease Day and the campaign to boost research into rare diseases.

Further details of the day and a list of worldwide events can be found at:


World Kidney Day

Thursday 9th March 2017 marks World Kidney Day (WKD) an annual global awareness and education event.

This year the theme is Kidney Disease and Obesity.

Every year, countless local, national and international events are organised by kidney charities, healthcare professionals, patient groups and individuals.

We encourage everyone to get behind the campaign and try to organise an activity or event to draw public attention to the importance of kidney health – what can be done to protect kidneys before disease strikes, and to assist patients who already have chronic kidney disease.

Further details can be found at the World Kidney Day UK website: