Pure Red Cell Aplasia – RDG

  • Aims of the Group
    1. To increase awareness of Pure Red Cell Aplasia (PRCA).
    2. To streamline the diagnostic process.
    3. To investigate and implement measures to reduce the incidence of the disease.
    4. To empower affected patients in seeking help and support.
    5. To establish international collaborations to promote research into the causes and management of the disease.
  • Current Activities

    The date of the first PRCA patient information and support meeting will be advertised here soon.

  • International Links

    The RDG is communicating with several international bodies with a view to expand its activities internationaly.

  • Patient Support Groups

    A Facebook group for ESA Induced Pure Red Aplasia has been established.

  • Reports
  • Group Members
    • Professor Sunil Bhandari, Hull Royal Infirmary
    • Dr Cormac Breen, Guys Hospital London
    • Dr Paul Cockwell, Queen Elizabeth Hospital Birmingham
    • Dr Ian Davies, Patient Representative
    • Professor Simon Davies, University Hospital of North Staffordshire
    • Professor Ken Farrington, Lister Hospital Stevenage
    • Professor Philip Karla, Salford Royal Hospital
    • Professor Iain Macdougall, Kings College Hospital London
    • Dr Ash Mikhail, Morriston Hospital Swansea RDG Lead
    • Dr Charles Tomson, Southmead Hospital Bristol
    • Dr David Wheeler, Royal Free Hospital London
    • Dr Christopher Winearls, Oxford University Hospital
  • Disclosure of Conflicts of Interest

    None reported

Pure Red Cell Aplasia RDG Version 7 Updated November 2018
Written by the Pure Red Cell Aplasia Rare Disease Group