Mitochondrial disease affecting the kidney – RDG

  • Aims of the Group

    This group is to promote the recognition of patients with mitochondrial disease affecting the kidney.

  • Patient Support Group

    The Lily Foundation is the UK’s leading mitochondrial disease charity. Our mission is to improve the lives of people affected by mitochondrial diseases. We are working towards a future where mitochondrial diseases can be effectively treated or cured. 

    https://www.thelilyfoundation.org.uk/

  • Group Members
    • Prof John A Sayer, Consultant Nephrologist, Freeman Hospital, RDG lead
    • Dr Suren Kanagasundaram, Consultant Nephrologist, Freeman Hospital
    • Dr Gavin Hudson, Researcher, Newcastle University
    • Prof Robert Taylor, Professor, Newcastle University
    • Dr Yincent Tse, Consultant Paediatric Nephrologist, Great North Children’s Hospital
    • Sister Rachel Steel, Paediatric haemodialysis sister and patient representative
    • Dr Tom Connor, Consultant Nephrologist, Oxford Kidney Unit, Churchill Hospital
    • Prof Robert McFarland, Paediatric Neurologist, Wellcome Centre for Mitochondrial Research
Mitochondrial disease RDG Version 1 Updated April 2020
Written by the Mitochondrial disease Rare Disease Group