The National Registry of Rare Kidney Diseases (RaDaR) is a Renal Association initiative designed to pull together information from patients with certain rare kidney diseases.
This will give a much better understanding of how these illnesses affect people. It will also speed up research.
A joint patient and clinician event was held on Rare Disease Day 2018 to celebrate RaDaR’s successes to date and consider how can it can continue to improve in the future. RaDaR: The Next Ten Years