ARPKD Patient Information Day 2014

On Saturday 28th June 2014 the third ARPKD Patient Information Day was held at the Institute for Child Health at Great Ormond Street Hospital, London.

The day included talks from expert doctors, nurses and scientists about ARPKD as well as opportunities for families to share their own experiences. Workshops were held on a number of topics including benefits and coping skills

For further details of the event please click here or visit the Polycystic Kidney Disease Charity

Links to several of the presentations and workshop resources are now available to download in PDF format.

ARPKD – the basics – Dr Larissa Kerecuk (Nephrology Consultant, Birmingham Children’s Hospital)

Benefits Workshop – Contact a Family

ERIC Workshop – Education and Resources for Improving Childhood Continence.

ARPKD Patient Information day 2014 version 1 updated JuLY 2014
Written by the ARPKD Rare Disease Group