ADPKD Patient Info Day

The PKD Charity is organising an information and support day for patients and families with Autosomal Dominant Polycystic Kidney Disease (ADPKD). The event will be held at Engineers’ House, Bristol BS8 3NB on Saturday 11 March 2017 from 9.30 – 4pm. Attendance is free with lunch and refreshments provided but please register online to book your place.

Read more Posted on: 05.02.17 | Posted in ADPKD, Patient Information Days

Rare Disease Day

Tuesday 28th February 2017 marks the tenth international Rare Disease Day. Hundreds of patient organisations from all over the world will be holding events designed to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives. The theme for 2017 is research. Rare disease research is crucial to providing […]

Read more Posted on: 05.02.17 | Posted in Patient Information Days, Research

World Kidney Day

Thursday 9th March 2017 marks World Kidney Day (WKD) – an annual global awareness and education event. This year the theme is Kidney Disease and Obesity. Every year, countless local, national and international events are organised by kidney charities, healthcare professionals, patient groups and individuals. We encourage everyone to get behind the campaign and try to […]

Read more Posted on: 05.02.17 | Posted in Patient Information Days, Research

RaDaR recruits its 10,000th UK patient!

The National Registry of Rare Kidney Diseases (RaDaR) recruited its 10,000th UK patient in January 2017. RaDaR is an initiative by UK kidney specialists (the Renal Association). It is designed to pull together information from patients who have certain rare kidney diseases. This will give a much better understanding of how these illnesses affect people. It will also […]

Read more Posted on: 23.01.17 | Posted in RaDaR, Research