Cohorts and Diagnoses

The table below shows which cohort each patient diagnosis should go into on RaDaR. RaDaR Diagnoses and Cohorts Any questions please contact:

Read more Posted on: 21.02.18 | Posted in RaDaR

Pregnancy and MMF Guidelines

The Pregnancy and CKD Rare Disease Group have produced some new guidelines, following updated advice from the EMA regarding mycophenolate and pregnancy.  Mycophenolate and fathers to be letter 2018  

Read more Posted on: 08.02.18 | Posted in Guidelines, Pregnancy

15,000th RaDaR patient recruited!

  The 15,000th UK RaDaR patient was recruited on the 10th October 2017. This is a fantastic achievement and a testament to all the hard work and support that the 87 currently recruiting hospitals have given to the project over the years. Many thanks to you all.

Read more Posted on: 10.10.17 | Posted in News, RaDaR

RaDaR Ethics Amendment Approved

  The latest RaDaR amendment has now been approved by Ethics. The main changes concern clarification that RaDaR consent covers Patient View Sign-up, subject to local availability, and that patients consent to being contacted directly by a member of the central RaDaR team and/or their Rare Disease Group Lead regarding information events or further research […]

Read more Posted on: 10.10.17 | Posted in Ethics, News, Patient View, Research

Cystinosis Rare Disease Lead Advert

  After over five highly successful years in the role, Dr Graham Lipkin is stepping down as lead for the Cystinosis Rare Disease Group and a replacement is now being sought. This is a real opportunity to lead an enthusiastic group of clinicians, in partnership with patients and Industry, to support improvement in patient service, […]

Read more Posted on: 03.10.17 | Posted in Cystinosis, RaDaR, RDGs