The first international consensus guide on the diagnosis and management of Fibromuscular Dysplasia has recently been published. This can be accessed at: Journal of Hypertension Vascular Medicine
Read more Posted on: 04.02.19 | Posted in Fibromuscular Dysplasia, Guidelines, International, News, ResearchThe Fibromuscular Dysplasia (FMD) Rare Disease Group have produced a update on their recent patient information day in Salford and a review of current literature. FMD group update
Read more Posted on: 02.02.19 | Posted in Fibromuscular Dysplasia, News, Patient Information Days, RaDaR, RDGs, ResearchThe latest issue of the RaDaR Newsletter contains a summary of the year’s achievements and information about patient events in 2019.
Read more Posted on: 07.12.18 | Posted in aHUS, Clinician Event, Fibromuscular Dysplasia, Guidelines, NephroS, Nephrotic Syndrome, News, Newsletter, NURTure, Patient Information, Patient Information Days, Patient View, RaDaR, RDGs, ResearchNURTuRE (the National Unified Renal Translational Research Enterprise) is a unique kidney biobank for chronic kidney disease (CKD) and idiopathic nephrotic syndrome (INS), covering England, Scotland and Wales, which has the potential to unlock answers to some of the biggest questions about CKD and INS. Biological samples (plasma, serum, urine, DNA and tissue) from 3,000 […]
Read more Posted on: 06.12.18 | Posted in NephroS, Nephrotic Syndrome, News, NURTure, Patient Information, RaDaR, RDGs, ResearchA new Renal Association Clinical Practice Guideline has been published on Monitoring children and young people with, or at risk of developing Autosomal Dominant Polycystic Kidney Disease (ADPKD), co-written by members of the ADPKD Rare Disease Group For further details please visit www.renal.org/guidelines
Read more Posted on: 29.11.18 | Posted in ADPKD, Guidelines, News, Patient Information, RaDaR, RDGs, ResearchRaDaR is now open to a new condition – Nephronophthisis (NPHP). No amendments or further approvals are needed to start recruiting these patients. These patients should be entered into the renamed ARPKD/NPHP cohort on RaDaR. It is vital that sites then select either ARPKD or NPHP on the Primary Diagnosis tab so that we know which […]
Read more Posted on: 13.11.18 | Posted in UncategorizedWe would like your feedback on the first UK guideline on renal disease in pregnancy, which has been commissioned by the UK Renal Association. The aim of the guideline is to improve and standardise the care of women with CKD who are planning a pregnancy, pregnant, or in the postpartum period. The guideline has 97 statements that address the care of women with […]
Read more Posted on: 06.11.18 | Posted in Guidelines, PregnancyUK and Ireland’s First Patient Information Day on Fibromuscular Dysplasia (FMD) will take place on Saturday 19th January 2019 at Salford Royal Hospital Agenda The event is free to attend. To register please contact fmd.ukireland@gmail.com or @FmdsUk.
Read more Posted on: 01.10.18 | Posted in Fibromuscular Dysplasia, News, Patient Information Days, RaDaR, RDGs, Research
