News

Vasculitis Education Day

We are pleased to announce the inaugural UK and Ireland Rare Disease Group Vasculitis Education Day will be held on Thursday May 16th 2019 at Salford Royal Foundation Trust. Programme The day is predominantly aimed at renal and rheumatology trainees and junior consultants but is open to any interested health care professional. This event is free of charge to […]

Read more Posted on: 01.03.19 | Posted in Clinician Event, Conference, News, RaDaR, RDGs, Research, Vasculitis

ADPKD Patient Information Day – Saturday 30th March, Aintree

The PKD Charity will be hosting the next ADPKD Patient Information Day on Saturday, 30 March 2019 from 10:00am – 16:00pm at  Aintree University Hospital Lower Lane, Liverpool. L9 7AL The event is free to attend and will include talks on: The Basics of ADPKD Genetics Diet and Lifestyle Research Transplants Lunch and refreshments included […]

Read more Posted on: 28.02.19 | Posted in ADPKD, Clinician Event, Conference, News, Patient Information Days, RaDaR, RDGs, Research

Extension of RaDaR’s Portfolio support

Thanks to the generous support of Kidney Research UK, RaDaR will maintain it’s presence on the NIHR’s Research Portfolio until 31/03/2020. This ensures that recruiting sites will continue to receive financial support for every patient that they recruit to the rare disease registry.

Read more Posted on: 18.02.19 | Posted in News, NIHR, RaDaR, RDGs, Research

NURTuRE Study for Nephrotic Syndrome patients

NURTuRE (the National Unified Renal Translational Research Enterprise) is a unique kidney biobank for chronic kidney disease (CKD) and idiopathic nephrotic syndrome (INS), covering England, Scotland and Wales, which has the potential to unlock answers to some of the biggest questions about CKD and INS. Biological samples (plasma, serum, urine, DNA and tissue) from 3,000 […]

Read more Posted on: 06.12.18 | Posted in NephroS, Nephrotic Syndrome, News, NURTure, Patient Information, RaDaR, RDGs, Research

ADPKD Guidelines

  A new Renal Association Clinical Practice Guideline has been published on Monitoring children and young people with, or at risk of developing Autosomal Dominant Polycystic Kidney Disease (ADPKD), co-written by members of the ADPKD Rare Disease Group For further details please visit www.renal.org/guidelines  

Read more Posted on: 29.11.18 | Posted in ADPKD, Guidelines, News, Patient Information, RaDaR, RDGs, Research