News

Extension of RaDaR’s Portfolio support

Thanks to the generous support of Kidney Research UK, RaDaR will maintain it’s presence on the NIHR’s Research Portfolio until 31/03/2020. This ensures that recruiting sites will continue to receive financial support for every patient that they recruit to the rare disease registry.

Read more Posted on: 18.02.19 | Posted in News, NIHR, RaDaR, RDGs, Research

NURTuRE Study for Nephrotic Syndrome patients

NURTuRE (the National Unified Renal Translational Research Enterprise) is a unique kidney biobank for chronic kidney disease (CKD) and idiopathic nephrotic syndrome (INS), covering England, Scotland and Wales, which has the potential to unlock answers to some of the biggest questions about CKD and INS. Biological samples (plasma, serum, urine, DNA and tissue) from 3,000 […]

Read more Posted on: 06.12.18 | Posted in NephroS, Nephrotic Syndrome, News, NURTure, Patient Information, RaDaR, RDGs, Research

ADPKD Guidelines

  A new Renal Association Clinical Practice Guideline has been published on Monitoring children and young people with, or at risk of developing Autosomal Dominant Polycystic Kidney Disease (ADPKD), co-written by members of the ADPKD Rare Disease Group For further details please visit www.renal.org/guidelines  

Read more Posted on: 29.11.18 | Posted in ADPKD, Guidelines, News, Patient Information, RaDaR, RDGs, Research

New RaDaR condition – Nephronophthisis (NPHP)

  RaDaR is now open to a new condition – Nephronophthisis (NPHP). No amendments or further approvals are needed to start recruiting these patients. These patients should be entered into the renamed ARPKD/NPHP cohort on RaDaR. It is vital that sites then select either ARPKD or NPHP on the Primary Diagnosis tab so that we know which […]

Read more Posted on: 13.11.18 | Posted in Uncategorized