*Special notice on
COVID-19 – For general advice, please go to https://www.kidneycareuk.org/
We are currently preparing advice where relevant for specific disease groups. Once available this can be found in the disease groups in the Patient Information page
RaDaR is now open to a new condition – Nephronophthisis (NPHP).
No amendments or further approvals are needed to start recruiting these patients.
These patients should be entered into the renamed ARPKD/NPHP cohort on RaDaR. It is vital that sites then select either ARPKD or NPHP on the Primary Diagnosis tab so that we know which condition these patients have.
For any questions please contact Melanie.Dillon@renalregistry.nhs.uk