NURTuRE Study for Nephrotic Syndrome patients

NURTuRE (the National Unified Renal Translational Research Enterprise) is a unique kidney biobank for chronic kidney disease (CKD) and idiopathic nephrotic syndrome (INS), covering England, Scotland and Wales, which has the potential to unlock answers to some of the biggest questions about CKD and INS.

Biological samples (plasma, serum, urine, DNA and tissue) from 3,000 patients with CKD and over 800 patients with INS are being collected and stored under strict Standard Operating Procedures for both academic and industry research worldwide. This will lead to a greater ability to identify patients who will benefit from better, earlier diagnosis and person-specific new treatments, leading to better health outcomes.

We need patient volunteers for NURTuRE – no extra hospital visits… just your consent to be involved in this exciting, pioneering study.

If you are a patient with NS at one of the participating renal units, you may be offered the opportunity to take part in the NURTuRE biobank study. If you haven’t yet been approached, and you are interested in participating, please ask the doctor or nurse at your renal unit.

 NURTuRE is a research collaboration involving a charity, academia and industry, managed by Kidney Research UK and jointly led by the University of Bristol (NURTuRE-INS (NephroS) study) and the University of Nottingham (NURTuRE-CKD study).

Full details at www.nurturebiobank.org/patients

Cystinuria Patient Day – Saturday March 30th 2019 – London

 

A National Cystinuria Patient Day will be taking place on Saturday March 30th 2019 at Guy’s Hospital, London

The event is free to attend for patients and relatives but registration is essential via the CystinuriaUK website.

A draft programme is now available detailing the planned talks and discussion sessions.

For more information please visit www.cystinuriauk.co.uk/patient-day

 

ADPKD Information & Support Day – 15th September 2018 – Cambridge

 

Place: Frank Lee Centre Hexagon, Addenbrooke’s Hospital, Cambridge, CB2 0SN

Time: Saturday 15th September 2018, 9.30am to 4pm

Hosted by: Professor Fiona Karet and the PKD Charity

Talks and workshops on:

  • The Basics of ADPKD
  • Genetics and Screening
  • Diet and Lifestyle
  • Research
  • Transplants
  • New therapies
  • Pain

Registration Information: Online registration https://adpkdseptember2018.eventbrite.co.uk or contact Esther Wright at info@pkdcharity.org.uk

There is no charge to attend but a donation is always welcome. Refreshments and lunch included.