In celebration of World Kidney Day the latest edition of the RaDaR rare disease registry newsletter contains important information about our NIHR Portfolio extension and details of forthcoming patient and clinician information events.
Category: Newsletter
RaDaR Newsletter Winter 2018
The latest issue of the RaDaR Newsletter contains a summary of the year’s achievements and information about patient events in 2019.
RaDaR Newsletter – Summer 2018
The latest issue of the RaDaR Newsletter contains information about our compliance with the new General Data Protection Regulations (GDPR) and forthcoming events for HNF1B and ADPKD patients.
RaDaR newsletter, Spring 2018
The latest issue of the RaDaR Newsletter contains information about the recent NIHR Portfolio extension and details of up-coming events.
RaDaR Newsletter, Winter 2018
The latest copy of the RaDaR Newsletter contains important information about re-consenting paediatric patients as well as details of forthcoming events for Rare Disease Day (28th February) and World Kidney Day (8th March).
RaDaR Autumn Newsletter
The Autumn issue of the RaDaR Newsletter contains important updates about our latest amendment and the recruitment of our 15,000th patient.
RaDaR Newsletter, Summer 2017
The Summer issue of the RaDaR Newsletter features updates from the IgA Nephropathy and aHUS groups, details of a Cystinosis patient information event in Birmingham and important information about the forthcoming Ethics amendment.
NephroS Newsletter, June 2017
The latest issue of the NephroS Newsletter has details on the current accrual and a report from the recent Patient Information day in Bristol back in March.
RaDaR Newsletter, Spring 2017
The Spring Issue of the RaDaR Newsletter features the latest recruitment updates, details of an ADPKD research study and an advert for a forthcoming rare disease patient day in Birmingham.
RaDaR Newsletter
The latest edition of the RaDaR Newsletter contains important information about re-consenting paediatric patients when they reach the age of 16, as well as details of an upcoming ADPKD patient information day.
