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Category: Newsletter

RaDaR Newsletter Winter 2018

Posted on 07.12.18 by Melanie

 

The latest issue of the RaDaR Newsletter contains a summary of the year’s achievements and information about patient events in 2019. 

Posted in aHUS, Clinician Event, Fibromuscular Dysplasia, Guidelines, NephroS, Nephrotic Syndrome, News, Newsletter, NURTure, Patient Information, Patient Information Days, Patient View, RaDaR, RDGs, Research

RaDaR Newsletter – Summer 2018

Posted on 16.08.1816.08.18 by Melanie

 

The latest issue of the RaDaR Newsletter contains information about our compliance with the new General Data Protection Regulations (GDPR) and forthcoming events for HNF1B and ADPKD patients.

Posted in ADPKD, HNF1b, MGRS, News, Newsletter, Patient Information Days, RaDaR, RDGs, Research

RaDaR newsletter, Spring 2018

Posted on 01.05.1801.05.18 by Melanie

The latest issue of the RaDaR Newsletter contains information about the recent NIHR Portfolio extension and details of up-coming events.

Posted in HNF1b, IgAN, News, Newsletter, NIHR, Patient Information Days, RaDaR, RDGs, Research, UKKW

RaDaR Newsletter, Winter 2018

Posted on 25.01.1825.01.18 by Melanie

The latest copy of the RaDaR Newsletter contains important information about re-consenting paediatric patients as well as details of forthcoming events for Rare Disease Day (28th February) and World Kidney Day (8th March).

Posted in ADTKD, Clinician Event, Newsletter, Patient Information Days, Pregnancy, RaDaR, RDGs, Research

RaDaR Autumn Newsletter

Posted on 31.10.1701.11.17 by Melanie

The Autumn issue of the RaDaR Newsletter contains important updates about our latest amendment and the recruitment of our 15,000th patient.

RaDaR Newsletter Autumn 2017

Posted in Ethics, Guidelines, Newsletter, Patient View, RaDaR, Research

RaDaR Newsletter, Summer 2017

Posted on 09.08.1731.08.17 by Melanie

 

The Summer issue of the RaDaR Newsletter features updates from the IgA Nephropathy and aHUS groups, details of a Cystinosis patient information event in Birmingham and important information about the forthcoming Ethics amendment.

Posted in aHUS, Case Study, Clinician Event, Cystinosis, Ethics, IgAN, International, News, Newsletter, Patient Information Days, RaDaR, Research

NephroS Newsletter, June 2017

Posted on 01.06.17 by Melanie

 

The latest issue of the NephroS Newsletter has details on the current accrual and a report from the recent Patient Information day in Bristol back in March.

NephroS Newsletter June 2017

Posted in NephroS, Newsletter

RaDaR Newsletter, Spring 2017

Posted on 08.05.1708.05.17 by Melanie

 

The Spring Issue of the RaDaR Newsletter features the latest recruitment updates, details of an ADPKD research study and an advert for a forthcoming rare disease patient day in Birmingham.

 

Posted in Newsletter, Patient Information Days, RaDaR, Research

RaDaR Newsletter

Posted on 05.02.1722.02.17 by Melanie

The latest edition of the RaDaR Newsletter contains important information about re-consenting paediatric patients when they reach the age of 16, as well as details of an upcoming ADPKD patient information day.

Posted in ADPKD, Newsletter, Patient Information Days

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Latest news

  • Extension of RaDaR’s Portfolio support
  • Retroperitoneal Fibrosis Patient Involvement event – Saturday 2nd March
  • International consensus guide on Fibromuscular Dysplasia
  • Fibromuscular Dysplasia updates
  • Cystinosis Study Day, Saturday 26th January 2019

LATEST NEWS

View all
  • Extension of RaDaR’s Portfolio support
  • Retroperitoneal Fibrosis Patient Involvement event – Saturday 2nd March
  • International consensus guide on Fibromuscular Dysplasia
  • Fibromuscular Dysplasia updates

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