RSM meeting – 8th May

The Royal Society of Medicine (RSM) are hosting an event on Rare diseases and the kidney on the 8th May 2019 at Salford University, Media City Campus. This high quality meeting will bring experts from a wide variety of rare disease areas together to present the latest updates and developments in rare diseases.

The meeting will be of relevance to medical students, trainees and consultants as it provides a unique opportunity to keep up to date with latest clinical developments, opportunities and research being conducted and MDT and patient partnerships for these conditions.

Topics include:

  • Expert overview of a number of rare diseases affecting the kidney
  • Best medical management and potential treatments 
  • Latest research, developments and opportunities for future research using the RaDaR network

Poster

RaDaR Newsletter Spring 2019

In celebration of World Kidney Day the latest edition of the RaDaR rare disease registry newsletter contains important information about our NIHR Portfolio extension and details of forthcoming patient and clinician information events.

RaDaR Newsletter Spring 2019

World Kidney Day 2019

Help us bring together millions of people across the world and unite with one powerful voice for kidney health awareness.

World Kidney Day in the UK is led by the Kidney Charities Together group (Kidney Care UK, Kidney Research UK, NKF (Kidney Patients UK) and the PKD Charity). Help us bring together millions of people across the world and unite with one powerful voice for kidney health awareness.

Over 180 support packs have already been sent out to renal and transplant units as well as individuals and patient groups supporting the day by organising an awareness activity or event.

What are you planning, following the 2019 global theme of Kidney Health for Everyone Everywhere?

Ideas for activities and downloadable resources are available from www.worldkidneyday.co.uk and you can apply for a support pack www.worldkidneyday.co.uk/order-support-pack/ but don’t delay – stocks are running low

Follow us on Facebook, Twitter or Instagram and share our daily  Kidney Facts (from 7-14  March). You can also add a Facebook frameorTwibbon to your profile picture to show your support.

Vasculitis Education Day

We are pleased to announce the inaugural UK and Ireland Rare Disease Group Vasculitis Education Day will be held on Thursday May 16th 2019 at Salford Royal Foundation Trust.

Programme

The day is predominantly aimed at renal and rheumatology trainees and junior consultants but is open to any interested health care professional. This event is free of charge to attend and CPD event approval has been applied for.

To reserve a place please email hugh.cahill@addenbrookes.nhs.uk by Thursday 18th April.

ADPKD Patient Information Day – Saturday 30th March, Aintree

The PKD Charity will be hosting the next ADPKD Patient Information Day on Saturday, 30 March 2019 from 10:00am – 16:00pm at  Aintree University Hospital Lower Lane, Liverpool. L9 7AL

The event is free to attend and will include talks on:

  • The Basics of ADPKD
  • Genetics
  • Diet and Lifestyle
  • Research
  • Transplants

Lunch and refreshments included

To register please visit Eventbrite or email info@pkdcharity.org