The first international consensus guide on the diagnosis and management of Fibromuscular Dysplasia has recently been published. This can be accessed at:
The latest issue of the RaDaR Newsletter contains a summary of the year’s achievements and information about patient events in 2019.
A new Renal Association Clinical Practice Guideline has been published on Monitoring children and young people with, or at risk of developing Autosomal Dominant Polycystic Kidney Disease (ADPKD), co-written by members of the ADPKD Rare Disease Group
For further details please visit www.renal.org/guidelines
We would like your feedback on the first UK guideline on renal disease in pregnancy, which has been commissioned by the UK Renal Association. The aim of the guideline is to improve and standardise the care of women with CKD who are planning a pregnancy, pregnant, or in the postpartum period.
The guideline has 97 statements that address the care of women with CKD prior to, during, and following pregnancy. These statements are divided in sections including structure of care, medication, pre-pregnancy and pregnancy care, renal transplantation, dialysis, lupus, diabetes and congenital abnormalities of the kidney and urinary tract.
Via this survey (www.surveymonkey.co.uk/r/PregnancyCKD) your comments will inform the on going development of the guideline prior to publication in 2019.
The survey is open to both patients and clinicians.
We would be grateful for your participation by Friday 14th December.
If you have any queries, please contact firstname.lastname@example.org
With many thanks,
Kate Wiles (on behalf of the Pregnancy and Renal Disease Guideline Group)
NIHR Doctoral Research Fellow in Obstetric Nephrology
King’s College London
The draft of a new Renal Association Clinical Practice Guideline on Monitoring children and young people with, or at risk of developing Autosomal Dominant Polycystic Kidney Disease (ADPKD) is now available for review.
Please send any comments – listing page/guideline number as appropriate – to Melanie.Dillon@renalregistry.nhs.uk by Wednesday 10th October.
The Pregnancy and CKD Rare Disease Group have produced some new guidelines, following updated advice from the EMA regarding mycophenolate and pregnancy.
The Autumn issue of the RaDaR Newsletter contains important updates about our latest amendment and the recruitment of our 15,000th patient.
We are seeking expressions of interest for Renal Association Members to write new guidelines on the following topics:
- Medical management of stone disease
- Pregnancy and renal disease
To apply, please send a statement of no more than one side of A4, explaining why you would like to do this, along with a completed Conflict of Interest Form to Melanie.Dillon@renalregistry.nhs.uk by Tuesday 23rd November.