In celebration of World Kidney Day the latest edition of the RaDaR rare disease registry newsletter contains important information about our NIHR Portfolio extension and details of forthcoming patient and clinician information events.
A National Cystinuria Patient Day will be taking place on Saturday March 30th 2019 at Guy’s Hospital, London
The event is free to attend for patients and relatives but registration is essential via the CystinuriaUK website.
A draft programme is now available detailing the planned talks and discussion sessions.
For more information please visit www.cystinuriauk.co.uk/patient-day
A Cystinuria Patient Information Day will be held at Guy’s Hospital, London on Saturday 22nd April 2017
The day is designed for patients, families and carers to learn more about Cystinuria and to meet other people with the condition
Attendance is free with lunch and refreshments provided but please register online at www.cystinuriauk.co.uk to book your place.