The latest issue of the RaDaR Newsletter contains a summary of the year’s achievements and information about patient events in 2019.
Category: aHUS
aHUS research opportunity
RaDaR Newsletter, Summer 2017
The Summer issue of the RaDaR Newsletter features updates from the IgA Nephropathy and aHUS groups, details of a Cystinosis patient information event in Birmingham and important information about the forthcoming Ethics amendment.
New aHUS website
The National Renal Complement Therapeutics Centre in Newcastle has launched a new website – www.atypicalHUS.co.uk – containing information for both patients and clinicians on atypical haemolytic uraemic syndrome and C3 glomerulopathy. The site contains information about the diagnosis and management of aHUS, including patients who have end-stage renal failure and may benefit from the prophylactic use of eculizumab at time of renal transplantation.
