On Monday 27th April 2015 a Nephrotic Syndrome Patient Information Day was held at Birmingham Children’s Hospital.
The day provided patients and their families with an oppotunity to learn more about Nephrotic Syndrome, hear about the latest research studies, ask questions to the experts and share their own experiences.
For further details of the event please visit the Nephrotic Syndrome Trust.
Links to several of the presentations and the event programme are now available to download in PDF format.
- Programme and Information on Nephrotic Syndrome
- RaDaR Rare Disease Registry – Melanie Dillon (RaDaR Project Facilitator, Birmingham Children’s Hospital)