Information prescriptions contain information about a specific condition, possible treatments, care services, benefits advice and support groups. The aim is to provide you with information that is specific, comprehensible and timely. It is hoped that this will reduce unnecessary stress, anxiety or confusion about your condition.
The Cystinosis Information Prescription has been written by the Cystinosis Rare Disease Group.
You can download the whole Information Prescription here or choose from the individual sections below as required.