On Saturday 11th July 2015 the fourth ARPKD Patient Information Day was held at Leeds General Infirmary.
The day included talks from expert doctors, nurses and scientists about ARPKD as well as opportunities for families to share their own experiences. Workshops were held on a number of topics including incontinence and coping skills.
Links to several of the presentations and workshop resources are now available to download in PDF format.
ARPKD Overview – Dr Larissa Kerecuk (Nephrology Consultant, Birmingham Children’s Hospital)
ARPKD Genetics – Dr Larissa Kerecuk (Nephrology Consultant, Birmingham Children’s Hospital)
RaDaR Rare Disease Registry – Melanie Dillon (RaDaR Project Facilitator, Birmingham Children’s Hospital)
ERIC Workshop – Education and Resources for Improving Childhood Continence.