News

ADPKD Research Study

Cambridge Clinical Trials Unit are looking to recruit patients with Autosomal Dominant Polycystic Kidney Disease (ADPKD) to take part in a research study looking at water intake. The DRINK Study will randomly assign participants to either a daily prescription of high water intake or to continue with their usual drinking practices. The aim is to […]

Read more Posted on: 05.05.17 | Posted in ADPKD, Research

Cystinuria Patient Information Day, 22nd April

  A Cystinuria Patient Information Day will be held at Guy’s Hospital, London on Saturday 22nd April 2017 The day is designed for patients, families and carers to learn more about Cystinuria and to meet other people with the condition Attendance is free with lunch and refreshments provided but please register online at www.cystinuriauk.co.uk to […]

Read more Posted on: 29.03.17 | Posted in Cystinuria, Patient Information Days

Rare Disease Clinician Event, Germany

  RD-Connect, NeurOmics and EURenOmics are hosting a rare disease outreach day on 3rd May in Berlin, Germany. The event aims to brimg together stakeholders from the rare disease community to share the value of the tools created and the knowledge generated through these projects.  Invitation to Outreach Day  

Read more Posted on: 29.03.17 | Posted in Clinician Event, Research

New Website Design

Welcome to the newly re-designed RareRenal.org. Following a lengthy consultation process we have re-designed the site to allow for a cleaner navigation and more intuitive user journey. This includes a new logo, more prominent social media links and the option for patients as well as clinicians to sign up for our Newsletter advertising information events and […]

Read more Posted on: 26.02.17 | Posted in News

ADPKD Patient Info Day

The PKD Charity is organising an information and support day for patients and families with Autosomal Dominant Polycystic Kidney Disease (ADPKD). The event will be held at Engineers’ House, Bristol BS8 3NB on Saturday 11 March 2017 from 9.30 – 4pm. Attendance is free with lunch and refreshments provided but please register online to book your place.

Read more Posted on: 05.02.17 | Posted in ADPKD, Patient Information Days

Rare Disease Day

Tuesday 28th February 2017 marks the tenth international Rare Disease Day. Hundreds of patient organisations from all over the world will be holding events designed to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives. The theme for 2017 is research. Rare disease research is crucial to providing […]

Read more Posted on: 05.02.17 | Posted in Patient Information Days, Research

World Kidney Day

Thursday 9th March 2017 marks World Kidney Day (WKD) – an annual global awareness and education event. This year the theme is Kidney Disease and Obesity. Every year, countless local, national and international events are organised by kidney charities, healthcare professionals, patient groups and individuals. We encourage everyone to get behind the campaign and try to […]

Read more Posted on: 05.02.17 | Posted in Patient Information Days, Research
Page 3 of 41234