News

Vacancy – Rare Disease Committee Chair

The Renal Association invites expressions of interest from its members for the position of Chair of the Rare Diseases Committee detailed below. The deadline for submission of a formal expression of interest is 13 May 2018. Role Title: Chair of the Rare Diseases Committee (RDC) Appointed by an Appointments Panel Reporting To: Academic Vice President […]

Read more Posted on: 11.04.18 | Posted in News, RaDaR, RDGs, Research

RaDaR Portfolio Support Extended

  We are delighted to announce that the NIHR portfolio support for RaDaR has been renewed for the 2018-19 financial year, thanks to the generous support of Kidney Research UK. This provides accrual support for RaDaR up to 31/03/2019.

Read more Posted on: 21.03.18 | Posted in News, NIHR, RaDaR, Research

New Patient Information Leaflets

  The Renal Association’s Patient Information Sub-committee aims to develop and maintain a high quality patient information resource for use by kidney doctors, patients, families and carers in the UK. The work is carried out in partnership with Kidney Care UK The first round of leaflets have now been published on the RA website. This […]

Read more Posted on: 08.03.18 | Posted in News, Patient Information, Pregnancy, RaDaR

RaDaR: The Next Ten Years

On Wednesday 28th February 2018 a joint patient and clinician event was held at the Queen Elizabeth Hospital, Birmingham to celebrate RaDaR’s achievements to date and consider where we go in the next ten years. The Agenda, a report from the day and pdfs of the presentation can be found below. RaDaR Meeting Agenda RaDaR […]

Read more Posted on: 01.03.18 | Posted in Clinician Event, News, Patient Information Days, RaDaR, RDGs, Research

Cohorts and Diagnoses

The table below shows which cohort each patient diagnosis should go into on RaDaR. RaDaR Diagnoses and Cohorts Any questions please contact: Melanie.Dillon@renalregistry.nhs.uk

Read more Posted on: 21.02.18 | Posted in RaDaR

Pregnancy and MMF Guidelines

The Pregnancy and CKD Rare Disease Group have produced some new guidelines, following updated advice from the EMA regarding mycophenolate and pregnancy.  Mycophenolate and fathers to be letter 2018  

Read more Posted on: 08.02.18 | Posted in Guidelines, Pregnancy