News

NURTuRE Study for Nephrotic Syndrome patients

NURTuRE (the National Unified Renal Translational Research Enterprise) is a unique kidney biobank for chronic kidney disease (CKD) and idiopathic nephrotic syndrome (INS), covering England, Scotland and Wales, which has the potential to unlock answers to some of the biggest questions about CKD and INS. Biological samples (plasma, serum, urine, DNA and tissue) from 3,000 […]

Read more Posted on: 06.12.18 | Posted in NephroS, Nephrotic Syndrome, News, NURTure, Patient Information, RaDaR, RDGs, Research

ADPKD Guidelines

  A new Renal Association Clinical Practice Guideline has been published on Monitoring children and young people with, or at risk of developing Autosomal Dominant Polycystic Kidney Disease (ADPKD), co-written by members of the ADPKD Rare Disease Group For further details please visit www.renal.org/guidelines  

Read more Posted on: 29.11.18 | Posted in ADPKD, Guidelines, News, Patient Information, RaDaR, RDGs, Research

New RaDaR condition – Nephronophthisis (NPHP)

  RaDaR is now open to a new condition – Nephronophthisis (NPHP). No amendments or further approvals are needed to start recruiting these patients. These patients should be entered into the renamed ARPKD/NPHP cohort on RaDaR. It is vital that sites then select either ARPKD or NPHP on the Primary Diagnosis tab so that we know which […]

Read more Posted on: 13.11.18 | Posted in Uncategorized

Survey on RA Guideline on renal care in pregnancy

  We would like your feedback on the first UK guideline on renal disease in pregnancy, which has been commissioned by the UK Renal Association. The aim of the guideline is to improve and standardise the care of women with CKD who are planning a pregnancy, pregnant, or in the postpartum period. The guideline has 97 statements that address the care of women with […]

Read more Posted on: 06.11.18 | Posted in Guidelines, Pregnancy

Cystinuria Patient Day – Saturday March 30th 2019 – London

  A National Cystinuria Patient Day will be taking place on Saturday March 30th 2019 at Guy’s Hospital, London The event is free to attend for patients and relatives but registration is essential via the CystinuriaUK website. A draft programme is now available detailing the planned talks and discussion sessions. For more information please visit www.cystinuriauk.co.uk/patient-day […]

Read more Posted on: 26.09.18 | Posted in Cystinuria, News, Patient Information Days, RaDaR, RDGs, Research