News

New RaDaR Cohort – MGRS

  RaDaR is now open to a new Cohort of patients – Monoclonal Gammopathy of Renal Significance (MGRS) – which covers the following conditions:   AH amyloidosis AHL amyloidosis AL amyloidosis C3 glomerulonephritis with monoclonal gammopathy (Cryo)crystalglobulin-induced nephropathy Crystal-storing histiocytosis Fibrillary Glomerulonephritis Immunotactoid/Glomerulonephritis with Monoclonal Immunoglobulin Deposits (GOMMID) Light chain cast nephropathy Light chain Fanconi Syndrome Monoclonal […]

Read more Posted on: 03.07.18 | Posted in MGRS, News, Patient Information, RaDaR, RDGs, Research

New Rare Disease Committee Chair

  We are pleased to announce that Dr Danny Gale, Senior Clinical Research Fellow, UCL Centre for Nephrology, will take over from Dr Detlef Bockenhauer as the Chair for the Renal Association’s Rare Disease Committee and the lead for RaDaR. The official handover will take place at UK Kidney Week (19th- 21st June). Dr Kate Bramham, […]

Read more Posted on: 15.06.18 | Posted in News, RaDaR, RDGs, Research, UKKW

Vacancy – Rare Disease Committee Chair

The Renal Association invites expressions of interest from its members for the position of Chair of the Rare Diseases Committee detailed below. The deadline for submission of a formal expression of interest is 13 May 2018. Role Title: Chair of the Rare Diseases Committee (RDC) Appointed by an Appointments Panel Reporting To: Academic Vice President […]

Read more Posted on: 11.04.18 | Posted in News, RaDaR, RDGs, Research

RaDaR Portfolio Support Extended

  We are delighted to announce that the NIHR portfolio support for RaDaR has been renewed for the 2018-19 financial year, thanks to the generous support of Kidney Research UK. This provides accrual support for RaDaR up to 31/03/2019.

Read more Posted on: 21.03.18 | Posted in News, NIHR, RaDaR, Research

New Patient Information Leaflets

  The Renal Association’s Patient Information Sub-committee aims to develop and maintain a high quality patient information resource for use by kidney doctors, patients, families and carers in the UK. The work is carried out in partnership with Kidney Care UK The first round of leaflets have now been published on the RA website. This […]

Read more Posted on: 08.03.18 | Posted in News, Patient Information, Pregnancy, RaDaR

RaDaR: The Next Ten Years

On Wednesday 28th February 2018 a joint patient and clinician event was held at the Queen Elizabeth Hospital, Birmingham to celebrate RaDaR’s achievements to date and consider where we go in the next ten years. The Agenda, a report from the day and pdfs of the presentation can be found below. RaDaR Meeting Agenda RaDaR […]

Read more Posted on: 01.03.18 | Posted in Clinician Event, News, Patient Information Days, RaDaR, RDGs, Research

Cohorts and Diagnoses

The table below shows which cohort each patient diagnosis should go into on RaDaR. RaDaR Diagnoses and Cohorts Any questions please contact: Melanie.Dillon@renalregistry.nhs.uk

Read more Posted on: 21.02.18 | Posted in RaDaR
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