Information Standard

The process for producing patient information on this site is accredited by the  Information StandardThis highlights our commitment to produce high-quality, evidence-based information for both patients and clinicians.

The Rare Disease Committee shall hold responsibility for the accuracy of the information they publish and neither the Scheme Operator nor the Scheme Owner shall have any responsibility whatsoever for costs, losses or direct or indirect damages or costs arising from inaccuracy of information or omissions in information published on this website on behalf of the Rare Disease Committee.

Further details can be found in the RareRenal.org Protocol and our Writing for RareRenal Guidelines, which explains the review process that each page on this site goes through before it is published.

In order to maintain relevance and ensure accuracy, the information on this site will be reviewed every year, with amendments and updates made as required.

Information Standard Version 5 Updated February 2017
Written by the Rarerenal.org Operational Management Board