Cystinosis – Clinician Information

For information about white blood cell cystine tests please click here.

A Cystinosis Patient and Clinician Education Day will be held on Tuesday 19th September 2017 from 9.30 – 16.30 at the Postgraduate Centre, Queen Elizabeth Hospital, Birmingham.

Further details will be available nearer the time but to express an interest in taking part as a speaker please contact

A Cystinosis Study Day for Clinicians was held at the Queen Elizabeth Hospital in Birmingham on Tuesday 1st October 2013. Further details of the day and copies of the presentations can be found here.


Cystinosis Clinician Information Version 6 Updated May 2017
Written by the Cystinosis Rare Disease Group