Cystinosis – Clinician Information

For information about white blood cell cystine tests please click here.

A Cystinosis Patient Education Day will be held on Tuesday 19th September 2017 from 9.30am – 4.30pm at the Post Graduate Centre, Queen Elizabeth Hospital, Birmingham.

Patients and Health Professionals with an interest in Cystinosis are welcome.

To register for a place, please contact Michelle

Cystinosis Patient Day 2017

A Cystinosis Study Day for Clinicians was held at the Queen Elizabeth Hospital in Birmingham on Tuesday 1st October 2013. Further details of the day and copies of the presentations can be found here.


Cystinosis Clinician Information Version 7 Updated July 2017
Written by the Cystinosis Rare Disease Group