RaDaR is now open to a new condition – Nephronophthisis (NPHP).
No amendments or further approvals are needed to start recruiting these patients.
These patients should be entered into the renamed ARPKD/NPHP cohort on RaDaR. It is vital that sites then select either ARPKD or NPHP on the Primary Diagnosis tab so that we know which condition these patients have.
For any questions please contact Melanie.Dillon@renalregistry.nhs.uk