RaDaR: The Next Ten Years

On Wednesday 28th February 2018 a joint patient and clinician event was held at the Queen Elizabeth Hospital, Birmingham to celebrate RaDaR’s achievements to date and consider where we go in the next ten years.

The Agenda, a report from the day and pdfs of the presentation can be found below.

RaDaR Meeting Agenda

RaDaR Meeting Report

Presentations

RaDaR Introduction – Melanie Dillon

RaDaR Future – Detlef Bockenhauer

Examples of research using RaDaR – Liz Colby

Membranous Nephropathy Presentation Paul Brenchley

Kidney Research UK – Sarah-Louise Harwood & Tracey Murray

Kidney Care UK – Fiona Loud

CANCELLED – Cystinosis Study Day, Tuesday 19th September

Due to unforeseen circumstances the National Cystinosis Study Day has had to be postponed. The event will hopefully be re-scheduled for Spring 2018. Details will be published here once they are confirmed.

 

A National Cystinosis Study Day will be held on Tuesday 19th September 2017 from 9.30am – 4.30pm at the Post Graduate Centre, Queen Elizabeth Hospital, Birmingham.

Patients and Health Professionals with an interest in Cystinosis are welcome.

To register for a place, please contact Michelle LoweMichelle.lowe@uhb.nhs.uk

Cystinosis Patient Day 2017

ADPKD Info Day, 1st July, London

 

Place: Monckton Lecture Theatre, St George’s Hospital, Cranmer Terrace, Tooting, London SW17 0RE
Time: Saturday 1st July 2017, 9:30 am to 4 pm
Hosted by: Dr Joyce Popoola, Dr Anand Saggar and the PKD Charity

  • Learn about ADPKD (Autosomal Dominant PKD) and the latest research
  • Find out more about the new drug, Jinarc (tolvaptan)
  • Put your questions to the experts
  • Meet and share your experiences with others
  • Everyone welcome – patients, families and carers

Lunch and refreshments included. There is no charge, but a donation is welcome to help cover the costs.

Book online at Eventbrite.

ARPKD Family Day, 22nd July, Birmingham

 

The PKD Charity are organising an ARPKD Family Day on Saturday, 22nd July 2017 at Uffculme Centre, Queensbridge Road, Moseley, Birmingham B13 8QY from 10 am – 3pm.

The event will include:

  • Keynote talks about ARPKD from the experts
  • Roundtable discussions between parents, patients, doctors & scientists
  • Supervised entertainment & activities for children and young people at the Marvellous Superstar Summer Party organised by Birmingham Children’s Hospital

Travel bursaries are available.

ARPKD Family Info Day 2017 Flyer