The draft of a new Renal Association Clinical Practice Guideline on Monitoring children and young people with, or at risk of developing Autosomal Dominant Polycystic Kidney Disease (ADPKD) is now available for review.
Please send any comments – listing page/guideline number as appropriate – to Melanie.Dillon@renalregistry.nhs.uk by Wednesday 10th October.
The Pregnancy and CKD Rare Disease Group have produced some new guidelines, following updated advice from the EMA regarding mycophenolate and pregnancy.
Mycophenolate and fathers to be letter 2018
The Autumn issue of the RaDaR Newsletter contains important updates about our latest amendment and the recruitment of our 15,000th patient.
RaDaR Newsletter Autumn 2017