ADPKD Information & Support Day – 15th September 2018 – Cambridge


Place: Frank Lee Centre Hexagon, Addenbrooke’s Hospital, Cambridge, CB2 0SN

Time: Saturday 15th September 2018, 9.30am to 4pm

Hosted by: Professor Fiona Karet and the PKD Charity

Talks and workshops on:

  • The Basics of ADPKD
  • Genetics and Screening
  • Diet and Lifestyle
  • Research
  • Transplants
  • New therapies
  • Pain

Registration Information: Online registration or contact Esther Wright at

There is no charge to attend but a donation is always welcome. Refreshments and lunch included.

ADPKD Info Day, 1st July, London


Place: Monckton Lecture Theatre, St George’s Hospital, Cranmer Terrace, Tooting, London SW17 0RE
Time: Saturday 1st July 2017, 9:30 am to 4 pm
Hosted by: Dr Joyce Popoola, Dr Anand Saggar and the PKD Charity

  • Learn about ADPKD (Autosomal Dominant PKD) and the latest research
  • Find out more about the new drug, Jinarc (tolvaptan)
  • Put your questions to the experts
  • Meet and share your experiences with others
  • Everyone welcome – patients, families and carers

Lunch and refreshments included. There is no charge, but a donation is welcome to help cover the costs.

Book online at Eventbrite.

ADPKD Research Study

Cambridge Clinical Trials Unit are looking to recruit patients with Autosomal Dominant Polycystic Kidney Disease (ADPKD) to take part in a research study looking at water intake.

The DRINK Study will randomly assign participants to either a daily prescription of high water intake or to continue with their usual drinking practices.

The aim is to determine whether it is possible and safe for people to drink enough water to stop vasopressin, one of the key hormones that drives cyst growth in PKD. The study also wants to see if participants can measure their own fluid balance, using a simple urine stick test that can be done at home.

If successful, the study will help researchers to design a larger trial to look at whether high water intake can affect long term kidney function.

The researchers also want to include families in the study. If you are interested or have any family members who would be happy to take part, please contact the study team as below for more information:

Telephone: 01223 349 844                                   E-mail: